I would like to ask some things of those who have felt, or feel now, that they have an undiagnosed or “phantom” disease. Let’s say your doctors are confounded, or are losing patience with you. Tests continue to come back normal. You feel anything but normal. Your family feels helpless, or worse, tells you to snap out of it. Your social life is going downhill because you won’t commit to plans, or cancel them at the last minute. You have one “good day” out of a week, or maybe two weeks.
Depression is one thing that I am very aware of, and have been treated for, and doctors have told me that physical symptoms can be coupled with this condition. If that is so, and chronic 24/7 pain and debilitating weakness can be attributed to it, then I would say it is the worst thing that has ever visited this old guy.
I know, from reading some of your accounts, that sometimes the desperation is so great, we feel like throwing in the towel. I have even followed people on WordPress that seemed to me as if they were going to do something desperate. That’s when I realize I’m not there yet, and I try to keep them talking and check in with them frequently.
How do you stay afloat?
What has the medicine man told you?
Is your family supportive, or do you have any community support?
What’s your percentage of “good days”?
Do you feel as if you’re being punished for something?
So many more things I could ask, but that’s good for starters.
I appreciate your reading.